Design a site like this with WordPress.com
Get started

Dear Diary

Dear Diary  January I don’t want to waste any more time. Bodies are so amazing, they can do such amazing things, but you never know when they will stop working, and mine is already half beat. I don’t want to waste any more of the time I have being ‘good’ and following the rules. I... Continue Reading →

My Voice

I took this picture for the chair prompt week, and didn’t post it. Not because it wasn’t ready, or it didn’t fit the theme, but because I was having a mini wobble about my photos and their suitability for Sinful Sunday. The truth is, I looked at everyone else’s amazing work and I didn’t feel... Continue Reading →

Today

CW: mental health/suicide I have days, with this disease, when I feel deeply suicidal. When the frustration and pain and loss is all too much, and I feel so low that I begin to wonder if the dysfunction in my body is reaching my brain, turning my synapses against me and making me self-destruct horribly,... Continue Reading →

I am not ok

I am so very not ok. This is not going to be a fun or popular post. I have been dreading writing it for weeks, hoping that waiting might make it go away. The truth is, I was beginning to feel some measure of hope again, gradually building towards a slow but meaningful and connected... Continue Reading →

Reflection

Then a big thing happensand your body changes.You've got a new body.New body bits.And your mind struggles to know it. Michael Rosen I read an amazing poem this week by Michael Rosen, which is all about how it feels to live in a body that has changed. Our bodies are changing all the time of... Continue Reading →

Beautiful

Last week, I tweeted this: "Sometimes when my life feels small and boring, and I feel like I have no power or autonomy, I open the hidden folder of photos on my phone and remember that I am brave and bold and wild beyond imagining." Living with chronic illness for the most part is an... Continue Reading →

Enough

Sometimes I find myself struggling with feelings of 'not enough'. Not just the background hum of 'am I enough?', which I have worked hard to banish as much as is possible, but a feeling of there not being enough of what I need. I am hungry for life, and living, and connection, and love, and... Continue Reading →

Create a website or blog at WordPress.com

Up ↑