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My Voice

I took this picture for the chair prompt week, and didn’t post it. Not because it wasn’t ready, or it didn’t fit the theme, but because I was having a mini wobble about my photos and their suitability for Sinful Sunday. The truth is, I looked at everyone else’s amazing work and I didn’t feel... Continue Reading →

Today

CW: mental health/suicide I have days, with this disease, when I feel deeply suicidal. When the frustration and pain and loss is all too much, and I feel so low that I begin to wonder if the dysfunction in my body is reaching my brain, turning my synapses against me and making me self-destruct horribly,... Continue Reading →

I am not ok

I am so very not ok. This is not going to be a fun or popular post. I have been dreading writing it for weeks, hoping that waiting might make it go away. The truth is, I was beginning to feel some measure of hope again, gradually building towards a slow but meaningful and connected... Continue Reading →

Reflection

Then a big thing happensand your body changes.You've got a new body.New body bits.And your mind struggles to know it. Michael Rosen I read an amazing poem this week by Michael Rosen, which is all about how it feels to live in a body that has changed. Our bodies are changing all the time of... Continue Reading →

Beautiful

Last week, I tweeted this: "Sometimes when my life feels small and boring, and I feel like I have no power or autonomy, I open the hidden folder of photos on my phone and remember that I am brave and bold and wild beyond imagining." Living with chronic illness for the most part is an... Continue Reading →

Enough

Sometimes I find myself struggling with feelings of 'not enough'. Not just the background hum of 'am I enough?', which I have worked hard to banish as much as is possible, but a feeling of there not being enough of what I need. I am hungry for life, and living, and connection, and love, and... Continue Reading →

Again

Every time I think I am beginning to make progress, something puts me right back here again.

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